| Year | Symptoms / Events | Drugs / Treatments | Supplements / Nutrition |
|---|---|---|---|
| 2010 | First symptom: tingling in left hand after diesel exposure | – | – |
| 2011 | Weakness develops in left hand, function lost | – | – |
| 2012 | Right hand function lost, stiffness in legs → ALS diagnosis 12/2012 | – | Magnesium (Mg), sublingual B12 |
| 2013 | Disease accelerates; traveled to Oslo, 8 weeks IV ceftriaxone (no effect) | Ceftriaxone (8 weeks) Lithium + valproate (off label, 2013–2016) Propofol sedations (9/2013–7/2014) |
Creatine (2013–2014) Liposomal glutathione (2013–2015) 5-HTP, resveratrol, niacin, nicotinamide, NR (2013–2020) MitoQ (intermittent) Garlic tea daily Green tea daily (from 2013) Switched to distilled water (from 2013) |
| 2014 | Rapid progression continues. July: PEG placed → switched to Isosource Mix and Isosource Protein formulas. |
Lithium + valproate; propofol continues | Same as 2013 Zinc gluconate (2014–2015) |
| 2015 | Progression begins to slow | Lithium + valproate | Zinc gluconate continues; others ongoing |
| 2016 | Jan: respiratory paralysis → ventilator. Progression halts completely. |
Lithium + valproate discontinued | Baicalin (2016–2019) |
| 2017 | Aug: tracheostomy (8 mm cannula), permanent ventilation. Airway clearance with cough assist approx. every hour, no tracheal suction. |
– | Baicalin continues; other supplements ongoing |
| 2018–2019 | Stable, no further progression | – | Baicalin; others continued |
| 2020–2024 | Over 9 years plateau; weight gain; toe movements return | – | ALCAR, NAC, curcumin, Lion’s Mane, TUDCA, B-complex Omega-3 (sardines), sauerkraut, onion Ibuprofen (Burana) regularly |
| 2025 | Still stable; whole left leg has begun twitching | – | Same regimen continues |
My ALS Timeline
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